We are the Pinault’s and we would like to introduce you to our busy family! We live on the west side of Phoenix Arizona, in Goodyear. Our family is a mix of personalities and interests, making each day full of adventure. At the heart of it all is our youngest, Ayrton, who is currently 1 ½ years old. Ayrton has Down syndrome, which is just part of what makes him such a unique and amazing character. He’s always exploring and learning new ways to do things. His infectious smile brightens up our lives every single day. Ayrton has three siblings. Layla, is our reserved and calculated four-year-old daughter. She takes joy in teaching Ayrton new skills. CJ is our energetic nine-year-old son. He is always on the move and eager to look out for his little brother. Adrianna is the oldest of the bunch and will be turning 12 this year. She loves playing volleyball and is a tremendous help with the rest of the gang. We’re also a family of dog lovers, with three friendly pups – Ringo, Trooper, and Senna. As you can imagine, they add even more excitement to our daily adventures. Speaking of adventures, we’re a family that loves the great outdoors. Whether it’s swimming in the pool, camping under the stars, or exploring new destinations, we treasure every chance to create enduring memories together. Beach trips and mountain getaways hold a special place in our hearts. We celebrate diversity, value togetherness, and embrace the beauty of life with all its quirks. Ayrton, with his boundless enthusiasm and loving spirit, serves as a daily reminder that our differences are what truly make us special.
- What does Down Syndrome Walk Arizona mean to you?
To us, the Down Syndrome Walk holds deep significance. It’s not just an event; it’s a symbol of unity, support, and celebration. It’s a day when families, friends, and communities come together to raise awareness, advocate for inclusivity, and show love for individuals like my son Ayrton who have Down syndrome. This event allows families, like ours, who have received invaluable support from the Down Syndrome Network, to give back by raising both money and awareness. It’s our way of saying “thank you” and ensuring that this network can continue to provide much-needed assistance to others.
- How has DSNetwork’s program and services directly supported your family and loved one with Down syndrome?
The Down Syndrome Network has had a positive impact on our family. When we first learned about Ayrton’s Down syndrome diagnosis, they were the first to reach out. Their support provided us with multiple resources, some of which we didn’t even realize we needed. The Down Syndrome Network has also provided us with groups specifically designed to provide support for Dads and Moms of children with Down Syndrome. These groups have allowed us to connect with parents who understand our experiences. Lastly, we’ve had the pleasure of attending events organized by the Down Syndrome Network. These occasions have allowed us to attend sporting events and family activities alongside other families who are also on this remarkable journey. It’s helps build togetherness and feels like being part of one big, extended family.
- What is your favorite part of the Walk?
One of our favorite aspects of the walk is how it serves as a heartfelt gathering that connects families and friends who share the love for someone with Down syndrome. It’s a day when we can share our experiences, offer and receive guidance, and form bonds that extend far beyond the event itself. But perhaps more importantly, the Down Syndrome Walk is a grand stage. It’s where we get to showcase to the world just how amazing, intelligent, and capable individuals with Down syndrome truly are. It’s a platform to challenge stereotypes and misconceptions, replacing them with a more inclusive and accurate understanding of their potential.
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