Family Resources

Down syndrome organizations

Down Syndrome Network Arizona (DSNetwork)

Support. Connect. Inspire.

From the initial diagnosis through school-aged years and beyond, individuals with Down syndrome and their families face a wide range of challenges and find themselves immersed in an ever-changing, often complicated journey to learn how to best support and nurture their loved ones. Down Syndrome Network helps every step of the way.

Programs & Services:

    • Expectant & New Parents
    • Club Xtra for KIDS (ages 0-7)
    • Tweens & Teens UP! (ages 8-17)
    • Xcell for Adultss (ages 18 & older)
    • MOMS Night Out
    • D.A.D.S. Dads Appreciating Down Syndrome
    • DS ConneX for grandparents & siblings

Additional Down Syndrome Organizations in Arizona

GiGi's Playhouse Phoenix

GiGi’s Playhouse provides free therapeutic and educational programs that advance literacy, math skills, motor skills and more.

Sharing Down Syndrome

Sharing Down Syndrome provides many positive support programs for families lucky enough to have a child with Down syndrome.

Southern Arizona Network for Down Syndrome (SANDS)

Provides programs and services to benefit the Down Syndrome community in Southern Arizona.

AZ Div of Developmental Disabilities

DDD Developmental Disabilities Services

DDD strives to support the choices of individuals with disabilities and their families by promoting and providing flexible, quality, member-driven services and supports within communities. Most services to children and adults with developmental disabilities are delivered in the family’s or person’s own home as well as their community.

Website >>

DES DDD Customer Service Center
Email: DDDCustomerServiceCenter@azdes.gov
Toll Free 844-770-9500
TTY/TDD 711
Fax: 602-542-6870

Office Hours:
Monday – Friday, 8 am – 5 pm

 

Arizona Early Intervention Program (AzEIP)

Starting early can make transition processes smoother and the Arizona Early Intervention Program (AzEIP) can do this for you. AzEIP serves families that have a loved one from birth-3 years old that may have a developmental delay/disability or born with a substance dependency.

More Information>>

Referrals>>

BROCHURES:

Down Syndrome Clinics & Medical

Pediatric Down Syndrome Clinic at Phoenix Children's

Pediatric Down Syndrome Clinic at Barrow Neurological Institute at Phoenix Children’s Hospital

Pediatric Down Syndrome Clinic >

602-933-2327
lcorella@phoenixchildrens.com

A comprehensive multi-disciplinary clinic focused on the coordinated and management of children with Down syndrome.

  • Pediatric Down syndrome clinic is led by
    a developmental pediatrician dedicated
    to working closely with parents and their
    child at every stage – from understanding
    a prenatal diagnosis to helping babies
    meet development milestones and
    supporting growing children and
    adolescents as they navigate school
    and friendships and live a fulfilling life.
  • The pediatric Down syndrome clinic
    works closely with specialists across
    Phoenix Children’s to ensure delivery
    of holistic care and support the
    child needs, when they need it.
  • The clinic is part of the renowned
    Barrow Neurological Institute at
    Phoenix Children’s, which allows the team to conveniently and quickly connect with the providers needed for the child’s care.
Virtual Down Syndrome Clinic

Down Syndrome Clinic to You (DSC2U)

With DSC2U, caregivers have an opportunity to complete an online intake form, where they can identify current health concerns about their son or daughter with Down syndrome. The responses will generate two personalized documents–a plan for caregivers and another one for the primary care provider.

Learn more >

Barrow Neurological Institute

Down Syndrome Clinical Research Studies

Learn more >>

Arizona Psychological Association

A state resource for finding a Psychologist and Psychological Testing References
Read more >

Pediatric Down Syndrome Clinics beyond AZ

Click here to see a map and listing of Down syndrome clinics in the United States.

National Pediatric Down Syndrome Clinics >

Adult Down Syndrome Clinics beyond AZ

Click here to see a map and listing of Down syndrome clinics in the United States.

National Down Syndrome Clinics >

Down syndrome Disintegrative Disorder, a clinical entity that is characterized by a loss of previously acquired adaptive, cognitive, and social functioning in persons with Down syndrome usually in adolescence to early adulthood.

Join an excellent private Facebook group that is full of resources, families and many key professionals belong to it as well. Dr. Santoro in California is an expert in this area and he’s an active member of the Facebook group: https://www.facebook.com/groups/218329221884336

ASU Adaptive Exercise Program

Additional National Resources

Therapies and Development
  • How Will Having a Child with Down Syndrome Affect My Family?
  • How Will Having a Sibling with Down Syndrome Affect My Other Children
  • What Are Some Tips for Taking Care of My Other Children’s Needs?
  • How Can I Keep My Relationship with My Partner Strong?
    Read More >>
Caring for Your Family

• How Will Having a Child with Down Syndrome Affect My Family?
• How Will Having a Sibling with Down Syndrome Affect My Other Children?
• What Are Some Tips for Taking Care of My Other Children’s Needs?
• How Can I Keep My Relationship with My Partner Strong?
Read More >>

Got Transition ™

Got Transition ™ aims to improve transition from pediatric to adult health care through the use of new and innovative strategies for health professionals and youth and families.

Read More >>

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