Resources for Medical & Therapy Professionals

Down Syndrome Resources for Professionals

medical resources for down syndrome

From Diagnosis to Delivery for Medical Professionals

Resources for delivering a diagnosis

Barrow Neurological Institute is recruiting individuals to participate in a Down syndrome resear ch study. The study will collect different types of brain scans, including MRI and PET scans, over time to see how Alzheimer’s disease changes the brain. Qualified study participants will receive all studyprocedures at no cost.

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How to deliver a diagnosis

Intervention Development for Caregivers of People with DS/IDD and ADRD ~ Arizona State University | College of Nursing and Health Innovations

Dr. David Coon and his team are currently recruiting family members, friends, and professionals to participate in a series of focus groups for caregivers of aging adults with Down syndrome or other developmental disabilities who also have/are experiencing memory loss or memory changes. Qualified study participants will be asked to provide their viewpoints and be compensated for their participation.

Contact: Philip Carll, MSW, Research Consultant
602-496-1239 | PCarll2@cox.net

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Referrals to Down Syndrome Network

Medical Resources for Adults with Down syndrome

GLOBAL Medical Care Guidelines for Adults with Down Syndrome

Barrow Neurological Institute is recruiting individuals to participate in a Down syndrome resear ch study. The study will collect different types of brain scans, including MRI and PET scans, over time to see how Alzheimer’s disease changes the brain. Qualified study participants will receive all studyprocedures at no cost.

Read more >

Autoimmune Disorders

Intervention Development for Caregivers of People with DS/IDD and ADRD ~ Arizona State University | College of Nursing and Health Innovations

Dr. David Coon and his team are currently recruiting family members, friends, and professionals to participate in a series of focus groups for caregivers of aging adults with Down syndrome or other developmental disabilities who also have/are experiencing memory loss or memory changes. Qualified study participants will be asked to provide their viewpoints and be compensated for their participation.

Contact: Philip Carll, MSW, Research Consultant
602-496-1239 | PCarll2@cox.net

Download flyer >

Down Syndrome Disintegrative Disorder

Join an excellent private Facebook group that is full of resources, families and many key professionals belong to it as well. Dr. Santoro in California is an expert in this area and he’s an active member of the Facebook group: https://www.facebook.com/groups/218329221884336

Endocrinology

The Adult Down Syndrome Center is one of eleven sites working together to carry out clinical trials more rapidly. The initial focus is aimed at preventing Alzheimer’s disease onset in people with Down syndrome as well as supporting relevant observational studies.

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therapy professionals

Feeding

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Fine Motor

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Speech & Language

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Music Therapy

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Gross Motor

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Sensory

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