DSNetwork’s Aging Matters families are invited to participate in ASU’s Exercise Program for Adults with Down Syndrome, ExDS. The workouts consist of evidence-based cardio, strength, and flexibility training in order to improve the health-related fitness of adults with Down syndrome. ASU undergraduate students, under the supervision of Dr. Holzapfel (aka. Simon), will be working on a 1:1 or 1:2 ratio of students to adults with Down syndrome to guide them through the exercises and ensure safety, to provide motivation and social interaction, and to learn from our wonderful adults with Down syndrome. Aspects of fitness will be assessed before and after the semester-long program in order to track progress.
NDSS Older Adult Resources
Alzheimer’s Disease & Down Syndrome
The risk of Alzheimer’s disease in adults with Down syndrome can stir deep feelings of fear and anxiety for family, friends, and caregivers who are otherwise trying to focus on supporting and celebrating a healthy and fulfilling adult life for an individual that they love. Education is one way to reclaim some power over a situation where it is impossible to have total control. This booklet was written to help empower families and caregivers with knowledge about the connection between Down syndrome and Alzheimer’s disease, suggestions about how to carefully and thoughtfully evaluate changes that may be observed with aging, and guidance about how to adapt and thrive within an ever-changing caregiving role when a diagnosis is made.
Adults with Down syndrome, along with their families and caregivers, need accurate information and education about what to anticipate as a part of growing older, so they can set the stage for successful aging. The purpose of this booklet is to help with this process. It is intended to be used by various learners: families, professionals, direct caregivers or anyone concerned with the general welfare of someone with Down syndrome.
Barrow Neurological Institute/Dignity Health Down Syndrome Clinical Research Study
Dr. Marwan Sabbagh and Barrow Neurological Institute are recruiting subjects to participate in a Down syndrome research study. The study will collect different types of brain scans, including MRI and PET scans, over time to see how Alzheimer’s disease changes the brain. Qualified study participants will receive all study procedures at no cost.
Intervention Development for Caregivers of People with DS/IDD and ADRD Arizona State University | College of Nursing and Health Innovations
Dr. David Coon and his team are currently recruiting family members, friends, and professionals to participate in a series of focus groups for caregivers of aging adults with Down syndrome or other developmental disabilities who also have/are experiencing memory loss or memory changes. Qualified study participants will be asked to provide their viewpoints on caring for people with DS/IDD who have developed memory changes/memory loss as they age and be compensated for their participation.
For more information please contact:
Philip Carll, MSW | Research Consultant | (602) 496-1239 | PCarll2@cox.net